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Millions of children live with chronic conditions in the US

15%-18% of the children in the United States have some form of chronic illness or disability. Some of the most common chronic conditions include: Asthma, Diabetes, Cancer and Congenital Heart Disease.

Navigating the healthcare ecosystem is tough

The Pediatric Healthcare Space is a complex, multi-stakeholder ecosystem fraught with its own set of unique challenges. Certain medical conditions may require the patient to see 3-4 specialists who may be geographically dispersed across different states or districts.

A link between positive habits & better outcomes

 Because chronic illnesses are lifelong conditions that require positive care management habits. There is a huge difference in outcomes between patients who are engaged & proactively monitoring their conditions & those who are passively suffering through it.

A deep-dive to understand the user journey

 Over the last year, we conducted ethnographic user research & interviewed chronically-ill teenagers, their parents, teachers & healthcare providers to understand the journey in more depth. It quickly became evident that certain touchpoints in their journey required a lot more support & scaffolding than others.

Initial diagnosis

Adapt and stabilize

 Back to school

Transition of care

Initial diagnosis

Adapt and stabilize

 Back to school

Transition of care

Identifying key gaps

We observed a key gap in the current pediatric healthcare ecosystem; although Physicians encourage chronically-ill teens to take up disease management tasks, very few hospitals can systematically support or monitor the child’s progress toward autonomy. It’s not uncommon to hear about 29-year-olds who live with their parents and heavily depend on them for care management tasks.

Unpacking & synthesizing research findings

We saw four distinct themes emerge, as we started to unpack & synthesize our qualitative design research findings

Disease management at home

Disease management in school

Behaviors and relationships

Motivating autonomy

12 principles to guide your design process

These principles were developed based on our user research and experience prototyping work over the last year. They are intended to guide innovators through special considerations for designing products/services that improve the care management experience for chronically-ill children and their families.

We would love to collaborate with you

Join our community of designers, healthcare practitioners, and experts to reimagine the care management experience for chronically-ill teenagers and their families!

Our Advisory Board

We are fortunate to be supported by an amazing board of advisors & thought-leaders in Pediatric Healthcare domain.

Gourab Saha

Physical Product Designer
Design Strategist

Sohini Guin

User Experience Designer
Design Strategist

Usman Khaliq

HCI Designer & Data Scientist
Design Researcher

Dr. David Rosenthal

Professor of Pediatrics,
School of Medicine,
Stanford University

Dr. Andrew Shin

Associate Medical Director,
Pediatric Intensive Care,
Stanford Children’s Health

Dr. David Schienker

Clinical Associate Professor
School of Medicine
Stanford University

Mariel R

Research Coordinator,
School of Medicine,
Stanford University

David Scheinker

Associate Professor
School of Medicine
Stanford University

David N Rosenthal

Professor (Pediatrics),
School of Medicine
Stanford University

Dr. Andrew Shin

Clinical Professor, Pediatrics (Cardiology),
Executive Medical Director - Innovation &
Clinical Effectiveness

Core Team

Gourab Saha

Industrial & Product Designer
MS(Design Impact) Student
Stanford University

Sohini Guin

User Experience Designer
MS(Design Impact) Student
Design Strategist

Usman Khaliq

HCI Designer & Data Scientist
MS(Design Impact) Student
Design Researcher