Chronic diseases are defined broadly as conditions that last 1 year or more and require ongoing medical attention or limit activities of daily living or both. Examples of chronic medical conditions in children include; Asthma, Diabetes, Cancer and Congenital Heart disease.
Managing a chronic disease
Because chronic illnesses are lifelong conditions that require positive disease management habits. There is a huge difference in patient blood glucose management outcomes, for example, between patients who are engaged, and proactively monitoring their blood-glucose level, versus those who aren’t.
Healthcare providers have limited visibility
Healthcare providers see patients with chronic disease sporadically, with periods of limited communication between each visit. Physicians & nurses emphasize the need to “connect” intermittent hospital visits with other aspects of the patient’s life to meaningfully drive down cost and improve outcomes.
Supporting underserved households
Some households with chronically-ill children (especially those from weaker socio-economic backgrounds, which typically account for about 40% of Physician’s patient load) have limited medical literacy & need more help than others in navigating the complex pediatric healthcare ecosystem.
Transitioning from pediatric to adult care
We observed a key gap in the current pediatric healthcare ecosystem; although Physicians encourage chronically-ill teens to take up disease management tasks, very few hospitals can systematically support or monitor the child’s progress toward autonomy. It’s not uncommon to hear about 29-year-olds who live with their parents and heavily depend on them for care management tasks.