Having identified a key gaps in transitioning from pediatric to adult care from our inital research, we interviewed dozens of chronically-ill teenagers, their parents, teachers & healthcare providers over a period of 6 months to understand 4 main aspects of their lives and develop our point of view.
How might we help chronically ill teens prepare for their future as independent adults?
Care management at home
What does care management look like at home? Why are these tasks carried out the way they currently exist?
Care management at school
What does care management look like at school? Why are these tasks carried out the way they currently exist?
Patterns and relationships
What kind of behavior patterns & relationship dynamics exist between a parent and a chronically-ill child? Why do they act the way they do?
How might help we help motivate autonomy in chronically-ill teenagers? What are some lessons we can learn from inspiring school teachers?